Thursday, January 28, 2010

Today's visit

is praising God because all of my labs and CT Scans are "normal"!! All of my issues with stomach and muscles seem to be med related! For the time being they have put a bunch on hold and will reintroduce at some point...but for now my body is starting to readjust and have more normal days!! I don't have to go back to Transplant clinic for a MONTH because of how well my LUNGS are and my body is readjusting!! Woohoo!! Yipee!!


I will go back to UCLA next week to see an ear, nose, and throat doctor because I have been having a lot of ear and sinus issues. Which really is not new to me but they have to figure out what I can now take that won't counteract my current meds. It's a weird science thing! I am planning on driving myself to that one. Which is huge considering I haven't been "allowed" to drive myself out of the city for over a year! INDEPENDENCE HERE I COME!!


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Sunday, January 24, 2010

A great Sunday!

After 8 weeks....TODAY I WENT TO CHURCH! The second I walked in it reminded me of the first breath of fresh air I took post-transplant, refreshingly clear! I have missed my church! The blessing was mine to see the faces of so many loved ones! Words cannot describe how FULL my heart is! (oh yeah, and I even wore heels! That's important too!)

And now to watch football!


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Saturday, January 23, 2010

Two months

Two months ago a family lost a son. A son who was not selfish. A son who loved life so much that he decided to donate it. A son who didn't even know who, when, or where this decision would be carried out. A son who was young. This family, who mourns, no longer has their son. I pray that he is in heaven. I pray that they have peace in knowing that their son's life is still being used by God.

Two months ago a family gained a wife and a mommy. A woman who wants nothing more than to serve them. A woman who wants nothing more than to PRAISE AND SERVE GOD all of her days. A woman who can now walk. A woman who can now ride a bike. A woman who looks to the day that she can run a marathon. A woman who has been healed from the enemy of death and illness. A woman who's heart holds every feeling of LOVE, THANKFULNESS, PERSERVERENCE, HOPE, AND FAITH.

Please join me in praying for the family of the 26yr old man that unselfishly gave life through a miraculous way that God has provided! Two months!

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Thursday, January 21, 2010

My day

Looooonnnggg 10hr day today! Gone @6:30, @UCLA 8am, finally see Doc @10 (learned they didn't schedule my CT Scans), DISGUSTING labs from 12:40-1:50, CT got scheduled @2, had to drink two huge containers of "coffee" contrast (gag...gag...literally outloud several times), also got an IV of contrast (seriously could they contrast anymore??), and finally home! WHEW!

Results: THEY ARE STILL TRYING TO FIGURE OUT WHAT IS WRONG WITH ME. I guess I haven't let you guys know that since my good day last Friday I've been in bed (fetal position) or on the couch all but one day. Between vomitting, digestive issues, and muscle/body pain my body is doing something. We just don't know what it is. Amazingly, today was a good feeling day! eventhough I had to fast 1/2 a day, take meds, do the disgusting lab stuff, and ingest so much contrast! I might know more tomorrow.

Goodnight!

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Friday, January 15, 2010

Another health update

HEALTH UPDATE: Today was amazing! The difference was night and day from the last 4-5 days!! No nausea, vomiting, or body/muscle cramps! (or staying in bed)

My transplant coordinator did call and say my Dr. Is VERY concerned with my symptoms and blood results which show very highly elevated levels in an area he tested. He said "I MUST" go to UCLA ER the second any of those sypmtoms come back. The test he ran doesn't pin point the issue but shows "an" issue.

LET'S JUST PRAY THAT IT IS/WAS NOTHING! AND DOESN'T COME BACK!! I now have to go back on thursday and have a couple CT SCANS done, EXTRA blood, and see the Gastro Doc...oh yay! you guys are amazing prayer warriors and I thank you so much for lifting me up! I love you guys FOREVER!

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