Friday, October 27, 2006

Acts 2:25-28


"I saw the Lord always before me.
Because he is at my right hand,
I will not be shaken.
Therefore my heart is glad and my
tongue rejoices;
my body also will live in hope,
because you will not abandon me to the
grave,
nor will you let your Holy One see
decay.
You have made known to me the paths
of life;
you will fill me with joy in your
presence."

This is the passage that appeared to me when I opened my Bible. I asked a series of terrifying questions, pleaded. Opened my Bible, looked down and this is what I read. Glorious Father worthy of all praise! To be spoken to through HIS word, priceless! I have my answer...Thank you LORD!

Thursday, October 26, 2006

It's time

Hello to all my loved ones out there! I begin this blog with much hesitation since it's not of the happiest news.

It's time. Manuel and I went down to UCLA yesterday and learned that it's time. My pulmonologist said that I need a transplant and that now is the time to start the process. My lungs are deteriorating. We've known that it was coming and I have been so open in letting you all know that at some point this would happen. However, it was still a slap in the face. Stupidly I thought, sure this is going to happen, but probably not for a couple of years. Oh, how human I am! Well the time is here. God is answering another prayer and reaching His hand out to me. He is giving me the help that I have been asking for. Almighty Father Gracious and Loving! How Great Is HIS Love.....great enough to hold me when I am hurting, whisper to me when I am lost, love me when I am scared. I, we, have confidence in His work. This is HIS work. Please help us in praying for HIM to hand pick my transplant team. To give them knowledge, skill, faith, and to bless them abundantly for what they do. Pray for the soul in which will be brought to HIM in order for me to receive the gift of life. I pray that this person know HIM and be able to meet HIM on the day of their rest. Pray for my precious husband and girls! For strength that only HE can provide during this process and for our walk to be guided by HIM. Pray for all of my family and dear friends.

My current pulmonologist at UCLA is handing my case over to the transplant doctor. I will be contacted by his office. I will begin a process of new exams and more in depth studies by him and his team. I don't yet know the length of time for any of this. When that process is over I will then go onto the transplant list and wait. Once again I don't yet know the amount of time. My case has floated around many doctors, all of whom have no answer as to what it is, why it is, or how it is that I am in this situation. But they all agree that it is and it's only getting worse. So this is why we start now before I am in the hospital and in an urgent state. I have to take care of myself and my family right now so that I don't get to an urgent state.

The help...please help me in being cautious. My life depends on health right now. So please let us know if you are sick before coming around us. Any minor thing (sore throat, cough, runny nose, cold, or cold sores) can be detrimental to my health. I'm sorry if I have offended anyone but I have to be safe. Please help your kids to not share foods, drinks, lip glosses with the girls.

I love you all beyond belief and am blessed to be able to share even the scariest of moments with you. God bless you!

Saturday, October 14, 2006

An Awesome Child of God!


I have been meaning to spend some blog time on my Analiese. I must say the frustration of raising a child that is exactly like me does not out weigh the happiness. I tell ya! This little girl never ceases to amaze me! When we went on our trip a couple of weeks ago she showed us her true spirit. You know those moments when your kid, or anyone for that matter, just shines in an inexplicable way? They just do and it is such a time of beauty to experience. I actually saw what she will be in heaven, the true her, the pure soul, the child God has made, and his unconditional love in her. Our trip had been going perfectly, always a sign of things to come, when on the fifth day Manuel's back went out. We were at Bryce Canyon in Utah, had just arrived and picked up the girl's Junior Ranger packet. He decided before we went to see the canyon he would take Bella to the bathroom. Well that did it! All he did was lift her up to wash her hands and he was done. He was in such pain when they came out of the bathroom it looked as if there should have been some blood involved. I was instantly annoyed. I wasn't sure how bad it was and was so mad at the timing of it. I actually got mad at him too for not using his knees the way he's supposed to. I know it is ridiculous of me. Since I have apologized so don't worry. I at the time though was mad because I couldn't do all of this stuff alone and he couldn't even walk so now he wouldn't even get to see the canyon. I thought, how was I going to take the girls to these spots alone, how was I going to put the ice chest and luggage in and out of the truck, and how was I going to take care of him? I have grown so dependent on him and now what? So the girls and I went and saw the canyon (highly recommended) and I had some quiet time to pray and get over myself. I had to say "down Julie, down". When we got back to the truck he just looked so sad to the point of tears for letting us down. What had I done? I made him feel bad. How dare I. I put that in check right away and let him know that it wasn't his fault and he had nothing to be sad about. I told him that somehow I was going to do it, not to worry! In my head I knew that there was no way I could. Well we stopped off at lunch and I told him "you are going to go in with us and you're going to use the wheelchair whether you like it or not"! I opened up the back of the truck, somehow hopped up into it and looked up and saw my little angel. Analiese had hopped in from the tire side and was already unhooking the tie down straps and bungees to the luggage and wheelchair. It was something out of a movie. Here is this little 60 pound girl literally flinging the luggage to the side and undoing straps that were really tight. She managed to get it all out and all I had to think about doing was getting the wheelchair off the bed and onto the ground. I tried and then tried again when a man walked up and offered to help. Analiese carried bags from the store, carried her sister, and was so happy the whole time. She never once stopped to think about it. She just stepped up! She is an awesome girl, she just amazes me. She has stepped up so many times over the last year, but this was jumps up not steps. I think back to the visual of her and all she lifted, threw, and carried and all I see is superhuman ability. It seriously was like a movie. THE POWER OF GOD! In my little girl! He used her, the only one who could that day, and she accepted!

Because she likes to read my blog...

Analiese, I love you so much! I will always tear up remembering this day. I told you on that day what it meant to me but I want you to remember that God used you on that day and you accepted without thought. I know how you will be in heaven, how you will shine here and now, and I am more proud than you'll ever know. I rejoice in knowing my pride and love for you and for feeling only a spec of what our ALMIGHTY FATHER feels for you. Love~Mommy

Wednesday, October 11, 2006

RUPUS

Hi, just call me Rupus! Analiese and I both chuckled when we heard this word come out of my doctors mouth the other day. I went to UCLA to see my rhuematologist on Monday. I have been avoiding my doctors and completely taking my great days for granted. At least from my doctor's perspective. She kind of gave me the stink eye when I told her that I have been avoiding her. I didn't want her to take it personally. I didn't think she understood me when I told her that I have been doing "GREAT"! She looked at me funny and asked me if it was because I was determined not to let my diseases affect me. I told her no, that it was answer to prayer. She still looked at me funny, then I thought "oh, she thinks I am crazy or doesn't believe in God". Well, then she walked up to me and started to do that thing to me that just makes me feel sick. She starts to push on my muscles and joints and I just wince in pain. As she does this she looks at Manuel and says "see that is why I asked you how she has been doing". Have I not been doing well? Have I just been imagining the last couple of months? I start to doubt everything my body has felt within the last couple of months. She then looked at me and told me that I am not doing great. "You're still very swollen this is not good" she says. So she tells me once again that I obviously have a very high pain tolerance. This is the point at which I can see God, again He is proving to me that He is my pain management. "How Great is Our God"? I just see it more and more with every visit that I go to. Every doctor tells me just how bad it is. I know it's bad I can feel the things that are happening to my body but it's just not like before. I can get up, I can walk, I can joke, and most of all I can love. There is no doubt in my mind that He is giving me the ability to do these things. I know that this body, this temporary outfit, is deteriorating and that's fine. I will fight for HIS will, not mine.
Okay so anyway, RUPUS! My doctor calls me RUPUS! No, it's not a funny name, it is a temporary diagnosis. The combination of Rheumatoid Arthritis and Lupus. Yep! That is me! She thinks that as my disease progresses I will go more toward Lupus. It is not like a cold or other diseases where one blood check or scan can show it. It is an illness that will become more apparent as it progresses. She says my disease process is A-typical. Of course it is! It wouldn't be Julie O if it wasn't!
p.s. spell check suggested I replace RUPUS with RUFUS!

Tuesday, October 10, 2006

I've been tagged!

Thanks Liz, love you!


The Rules
List seven songs you are into right now. No matter what the genre, whether or not they have words, or even if they’re not any good, but they must be songs you’re really enjoying now. Post these instructions in your LiveJournal/blog along with your seven songs. Then tag seven other people to see what they’re listening to.

1. Take This Life (my favorite song by him) and Flip Flops by Paul Wright (you have to hear this! He sings of all the places his flip flops have been. I love flip flops!)
2. Drifter by DecembeRadio
3. any song from Two or More!!
4. Wish by Brian Littrell
5. Enough by Bethany Dillon
6. Nothing Left to Lose by Matt Kearney
7. Praying for Sunny Days by Hyper Static Union

My blog friends have all been tagged so I'm tagged out!

At Least I Have A Personality

You Have A Type B+ Personality

You're a pro at going with the flow
You love to kick back and take in everything life has to offer
A total joy to be around, people crave your stability.

While you're totally laid back, you can have bouts of hyperactivity.
Get into a project you love, and you won't stop until it's done
You're passionate - just selective about your passions