Go figure!

Just as soon as I said how busy I was....We're on lock down! With all these fires going on around us the air quality is dangerous for me (as well as anyone) so...I'm not going anywhere! The air quality has been horrible but yesterday and today look better. I've been reminded that looks can be deceiving those harmful particulates are still flying around out there. So we're still on lock down! We've been playing games, making sock dolls, wrestling, having tickle wars, playing scrabble junior (I'm training them young), and watching documentaries. Still having fun! Our phone has been ringing off the hook with well wishers and system checkers ("do you need anything while I'm out?"). The coolest thing that has happened since Sunday is...WE BOUGHT SCRABBLE ON MY CELL PHONE! We can play anywhere now! I was on a real big losing streak, losing by more than 100pts. each time! Then I scored 90pts. on one word! That was a great comeback! Poor Manuel! :( I use to think that Scrabble players were nerds but now I'm happy to call myself a Scrabble nerd!

It feels good to be busy! (what am I thinking?)

It does feel good to be busy. We had an extremely busy day today, and surprisingly enough I loved it! I dreaded it all week and wanted to cancel this morning. Instead, I prayed for God to give me what He could to help me make it the best day possible, and that He did! We woke up early and Analiese and I went on a field trip. Which, as many have already heard me say, was the most awesome field trip ever. Or maybe it's because we don't get out much! LOL It was great to be able to do this field trip with Analiese! Then we rushed home ate lunch and ran over to the skating rink for our monthly homeschooler skate day. The girls had a blast! We came home for an hour then went to Bella's soccer practice. It was one of those dinner in the car days. After her practice we ran over to AWANAS. Whew! I dropped the girls off, said hello to many loved ones, heard a kid cough and then headed out of dodge! So now I'm home wanting to turn on the TV but not allowing myself to because I know the minute I do I'm gonna fall asleep and be done for the day! I keep thinking that tomorrow I have nothing to do but duh, we have our home school co-op day tomorrow until 2! But it does feel so good to be a "normal" mommy running the kids around! I just pray for God to sustain me even more tomorrow than today! Life is good and I love this day....now to wash the dishes!

You don't know what you have until it's gone!

This phrase is so true! I miss my brother! My older brother, Sal, moved to San Francisco and I miss him. He moved from San Diego to the Bay Area to move in with his girlfriend J.P. I am so happy for both of them and I absolutely love her! But I miss my brother! I miss him even more right now because it's soccer season and he can't see his god daughters games and because I just miss him so much! I want so badly to get in the car and take a weekend road trip to see them. Manuel won't let me though, something about waiting for new lungs and stuff! I kind of want to throw a fit and say "but I want to go...I really, really do! I miss him!" Needless to say though I am regretting taking for granted all the years that he was much closer!

I'm only a week late!

No, I'm not pregnant! I'm only a week late in posting what happened at my appointment. Sorry, I just am so tired of talking about me and that's probably why I've stopped blogging so much. But as many friends tell me it's not fair to you guys. So anyway, last Monday went well. My tests went well and I wasn't tired at all. The best of all was going to the support group. I had two really heavy weights lifted off of me. Just some stresses that I have been holding on to. We met a woman who was 6 weeks post transplant and was more lively than anyone I know. She spoke like a mile a minute, she ate a lot, and giggled even more! It was great. Turns out she received a single lung from a 15 year old donor. I still get chills when I say that. It's the weirdest thing to say something so happy yet so sad at the same time. An oxymoron sentence (if at all possible). The social worker at the meeting, the guy who runs these meetings, explained that we needed to remember that her receiving one lung may be the reason for such a quick recovery. She was inspiration nonetheless. We also met a brother and sister who were there on behalf of their sister who had a double lung transplant. They said that she looked a lot like this lady at the same week in recovery yet suddenly took a turn for the worst. Turns out the lungs she received had an infection that was undetectable. When the symptoms came on they tried to treat them but it quickly turned into double pneumonia. She is currently in the hospital fighting. I have been on "the list" for 120 days. As I've mentioned before, my transplant coordinator says that I should in all likelihood be transplanted within 6 months. I didn't realize how fast it's gone and how close it is to that 6 month mark until the support group people said "wow, so you've been on "the list" for three and half months, you're getting close!" Now here I sit at 4 months on "the list" thankful that UCLA averages 6 months. Other states average 2 years. Praise God for this opportunity. I know He has my lungs chosen already, has had them since I was born and has healed me with this opportunity! So last weeks meeting was great, an awakening, for that I praise God! Love you!